Child with Intellectual Disability and Parental Response: A Comparative Study of Nuclear and Extended Family Structures in Khyber Pakhtunkhwa, Pakistan
Main Article Content
Keywords
Intellectual disability, Social exclusion, Parents, Extended family, Nuclear family.
Abstract
The birth of a child with an intellectual disability puts varying amount of pressure on nuclear and extended families. The purpose of this research paper is to explore the experiences of parents having children with intellectual disability in nuclear and extended families in Khyber Pakhtunkhwa (KP). For this purpose, 12 parents for in-depth interviews and 24 parents for three focus group discussions were selected. Furthermore, in-charge from each center was also interviewed. It was found that parents belonging to extended family structure comparatively feel relax due to family support in managing the child’s care and household activities. On the other hand, institutional support can reduce the burden of child care on parents resides in nuclear family structure.
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References
1. Ahmed, T. (1995). The population of persons with disabilities in Pakistan. Asia-Pacific Population Journal, 10(1), 39-62.
2. Bainbridge, C. (2012). Definition of Intelligence. The New York Times Company. Available from: http://www.giftedkids.about.com/od/glossary/g/intelligence.htm/. Accessed 28.07.2012.
3. Boyd, L. (2011). Problems faced by parents of mentally challenged children. Available from: http://www.livestrong.com/article/79436-problems-faced-parentsmentally-challenged/#ixzz21mGo7hbw on (via Google)/. Retrieved 27.07.2012.
4. Cohen, M.A. (2011). Impact of a handicapped child on the family. New Haven: Yale-New Haven Teachers Institute. C.f. Gohel, M., Mukherjee, S., & Choudhary, S.K. (2011). Psychosocial impact on the parents of mentally retarded children in Anand District. In Health Line, 2(2), 62-66.
5. Cook, G. (2006). Siblings of Disabled Have Their Own Troubles. The New York Times. Available from: http://www.infotrac. College.cengage.com/itw/infomark. Retrieved 12.08.2010.
6. Creswell, J.W. (2003). Research Design: Qualitative, Quantitative and Mixed Methods Approaches. 2nd ed. London: International Educational and Professional Publishers; p19-20.
7. Emerson E., Hatton, C., Robertson, J., Roberts, H., Baibes S., & Glover, D. (2010). People with Learning Disabilities in England. Durham: Improving Health and Lives: Learning Disability Observatory. pI.
8. Gohel, M., Mukherjee, S., & Choudhary, S.K. (2011). Psychosocial impact on the parents of mentally retarded children in Anand District. Health Line, 2(2), 62-66.
9. Government of Khyber Pakhtunkhwa. (2011). Millennium Development Goals. Peshawar: A Study and Report Compiled with the Support of United Nations Fund for Development (UNDP).
10. Inam, A., & Zehra, A. (2012). Effect of mentally retarded children on their non-retarded female siblings (12-18 years). IAMURE: International Journal of Social Science, 1(1), 3.
11. Jamison, J.W. (1965). The impact of mental retardation on the family and some directions of help. Journal of the National Medical Association, 57(2), 136-138.
12. Macionis, J.J. (1987). Sociology. 4th ed. New Jersey: Prentice Hall, Englewood Cliff.
13. Schalock, R.L., Buntinx, W., Borthwick-Duffy, A., Luckasson, R., Snell, M., Tasse, M., & Wehmeyer, M. (2007). User’s Guide: Mental Retardation: Definition, Classification, and Systems of Support. 10th ed. Washington. DC: American Association on Intellectual Disability and Developmental Disabilities.
14. Schalock, R.L., Buntinx, W., Borthwick-Duffy, A., Luckasson, R., Snell, M., Tasse, M. & Wehmeyer, M. (2007). The Renaming of Mental Retardation: Understanding the Change to the Term Intellectual Disability. 11th ed. Vol. 45. No. 2. Washington, DC: American Association on Intellectual Disability and Developmental Disabilities. p116-124.
15. World Health Organization. (1994). The International Classification of Diseases. 10th Revision (ICD-10) Guide for Mental Retardation. Division of Mental Health and Prevention of Substance Abuse, World Health Organization. Geneva. C.f. Xingyan, (2011). World Health Organization. World Report on Disability. Geneva: World Health Organization Press.
16. Zaman, M.Q. (1996). Causative Factors of Mental Retardation. Unpublished PhD Dissertation Peshawar: University of Peshawar, Department of Social Work.
2. Bainbridge, C. (2012). Definition of Intelligence. The New York Times Company. Available from: http://www.giftedkids.about.com/od/glossary/g/intelligence.htm/. Accessed 28.07.2012.
3. Boyd, L. (2011). Problems faced by parents of mentally challenged children. Available from: http://www.livestrong.com/article/79436-problems-faced-parentsmentally-challenged/#ixzz21mGo7hbw on (via Google)/. Retrieved 27.07.2012.
4. Cohen, M.A. (2011). Impact of a handicapped child on the family. New Haven: Yale-New Haven Teachers Institute. C.f. Gohel, M., Mukherjee, S., & Choudhary, S.K. (2011). Psychosocial impact on the parents of mentally retarded children in Anand District. In Health Line, 2(2), 62-66.
5. Cook, G. (2006). Siblings of Disabled Have Their Own Troubles. The New York Times. Available from: http://www.infotrac. College.cengage.com/itw/infomark. Retrieved 12.08.2010.
6. Creswell, J.W. (2003). Research Design: Qualitative, Quantitative and Mixed Methods Approaches. 2nd ed. London: International Educational and Professional Publishers; p19-20.
7. Emerson E., Hatton, C., Robertson, J., Roberts, H., Baibes S., & Glover, D. (2010). People with Learning Disabilities in England. Durham: Improving Health and Lives: Learning Disability Observatory. pI.
8. Gohel, M., Mukherjee, S., & Choudhary, S.K. (2011). Psychosocial impact on the parents of mentally retarded children in Anand District. Health Line, 2(2), 62-66.
9. Government of Khyber Pakhtunkhwa. (2011). Millennium Development Goals. Peshawar: A Study and Report Compiled with the Support of United Nations Fund for Development (UNDP).
10. Inam, A., & Zehra, A. (2012). Effect of mentally retarded children on their non-retarded female siblings (12-18 years). IAMURE: International Journal of Social Science, 1(1), 3.
11. Jamison, J.W. (1965). The impact of mental retardation on the family and some directions of help. Journal of the National Medical Association, 57(2), 136-138.
12. Macionis, J.J. (1987). Sociology. 4th ed. New Jersey: Prentice Hall, Englewood Cliff.
13. Schalock, R.L., Buntinx, W., Borthwick-Duffy, A., Luckasson, R., Snell, M., Tasse, M., & Wehmeyer, M. (2007). User’s Guide: Mental Retardation: Definition, Classification, and Systems of Support. 10th ed. Washington. DC: American Association on Intellectual Disability and Developmental Disabilities.
14. Schalock, R.L., Buntinx, W., Borthwick-Duffy, A., Luckasson, R., Snell, M., Tasse, M. & Wehmeyer, M. (2007). The Renaming of Mental Retardation: Understanding the Change to the Term Intellectual Disability. 11th ed. Vol. 45. No. 2. Washington, DC: American Association on Intellectual Disability and Developmental Disabilities. p116-124.
15. World Health Organization. (1994). The International Classification of Diseases. 10th Revision (ICD-10) Guide for Mental Retardation. Division of Mental Health and Prevention of Substance Abuse, World Health Organization. Geneva. C.f. Xingyan, (2011). World Health Organization. World Report on Disability. Geneva: World Health Organization Press.
16. Zaman, M.Q. (1996). Causative Factors of Mental Retardation. Unpublished PhD Dissertation Peshawar: University of Peshawar, Department of Social Work.
